Neurofibromatosis and genetic discrimination

NF Canada has joined the Canadian Coalition for Genetic Fairness (CCGF/CCEG). The coalition is a group of 14 organizations dedicated to establishing protections against genetic discrimination for all Canadians. Their mission is to educate Canadians about genetic discrimination and to influence federal and provincial governments, and other relevant organizations, to create positive change.

Huntington Society Canada is spearheading this Coalition to introduce legislation to prevent genetic information from being factored into decisions impacting a person’s life (e.g., employment/hiring practices, life insurance, mortgage eligibility, health and disability insurance).

We would like to hear from you if you have been denied employment, insurance coverage or benefits based on your genetics or family history. Please send your story to us. Confidentiality is protected and the examples will be summarized anonymously. To learn more about the CCGF and to take action visit the website.