Info for Patients
Facing a life with Neurofibromatosis may have you feeling anxious, scared and filled with questions. The most important thing to keep in mind is that you are not alone. There are nearly 10,000 Canadians who, just like you, are bravely dealing with the challenges of NF. While every case is different, most NF patients are leading full, rewarding lives – raising families, progressing in their careers and traveling the world.
We’ve compiled several articles on NF that are full of information on the different forms of NF. There are also many associations in your own region that can provide you with support and information that will assist you and your loved ones through your journey with NF. They can help answer your questions and connect you with fellow NF patients in your area.
It may also be helpful to read about other Canadians with NF, who have been kind enough to share their stories with us.
NF Stories
Everybody diagnosed with Neurofibromatosis has a different story to tell. We hope you are inspired and encouraged by these courageous individuals who each face NF in their own way.
Edmonton Marathon Festival
The 2010 Intact Insurance Canadian Derby Edmonton Marathon Festival is being held on August 21-22, 2010 and, for the first time, the event now includes a pledge program and NF Canada is participating. We need your help!
Neurofibromatosis and genetic discrimination
We would like to hear from you if you have been denied employment, insurance coverage or benefits based on your genetics or family history.
Book Excerpt: Disgruntled Body
An excerpt from Suzanne Houle’s book, Corps chagrin (Disgruntled Body). Translated from the original French text.
Detailed NF Info
Find out about the three different types of NF, their symptoms and impact.