Info for Patients
Facing a life with Neurofibromatosis may have you feeling anxious, scared and filled with questions. The most important thing to keep in mind is that you are not alone. There are nearly 10,000 Canadians who, just like you, are bravely dealing with the challenges of NF. While every case is different, most NF patients are leading full, rewarding lives – raising families, progressing in their careers and traveling the world.
We’ve compiled several articles on NF that are full of information on the different forms of NF. There are also many associations in your own region that can provide you with support and information that will assist you and your loved ones through your journey with NF. They can help answer your questions and connect you with fellow NF patients in your area.
It may also be helpful to read about other Canadians with NF, who have been kind enough to share their stories with us.
NF Stories
Everybody diagnosed with Neurofibromatosis has a different story to tell. We hope you are inspired and encouraged by these courageous individuals who each face NF in their own way.
2011 Holiday Appeal
We dream for a world without NF. You can help make this dream a reality by joining the NF Canada Dream Team today.
We are expanding the Dream Team to include everyone who wants to make a difference and support the vision of a world without NF.
NF Canada releases new resource for the NF community
NF Canada is pleased to announce the publication of Disgruntled Body, a book by Suzanne Houle that sheds light on the intimate struggle of living with NF. The book is available as an e-book and paperback - order yours today.
NF Canada Camp Scholarships Now Available
This year, NF Canada is pleased to be able to provide travel scholarships to the CTF camp. Partnering with the BCNF, travel funds will be available to youth with NF that live outside of B.C.
Dream Team 2011 Events
Check out the 2011 Dream Team events and run for a reason: to find a cure for NF! Explore an exciting new city and make new friends by joining the NF Dream team.
Genetic Discrimination
On Friday, October 15th, Genetic Discrimination was discussed on CBC’s program, The Current.
Edmonton Marathon Festival
The 2010 Intact Insurance Canadian Derby Edmonton Marathon Festival is being held on August 21-22, 2010 and, for the first time, the event now includes a pledge program and NF Canada is participating. We need your help!
Neurofibromatosis and genetic discrimination
We would like to hear from you if you have been denied employment, insurance coverage or benefits based on your genetics or family history.
Book Excerpt: Disgruntled Body
An excerpt from Suzanne Houle’s book, Corps chagrin (Disgruntled Body). Translated from the original French text.
Detailed NF Info
Find out about the three different types of NF, their symptoms and impact.