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About NF

Neurofibromatosis is pronounced neuro-fibroma-tosis and is commonly referred to as NF.

Neurofibromatosis (NF) is an umbrella name for three separate genetic disorders that share a common manifestation - tumour growth in the tissues that surround nerves. NF can result from a spontaneous genetic alteration or is inherited from one or both parents. While most of the tumours are benign, they can occasionally become malignant. Symptom manifestations and their severity vary greatly in all three forms of NF, making each form a distinct and complex genetic disorder. NF is equally prevalent across the world and is not limited by any gender, racial, social or economic boundaries.

Info for Patients

Resources for patients and those who support them. You will find articles, advice and links to help you deal with the challenges of NF.

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Physician/Research Info

Resources for members of the medical community. Articles and other materials to help you with the care, management and treatment of your patients.

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NF Stories

Everybody diagnosed with Neurofibromatosis has a different story to tell. We hope you are inspired and encouraged by these courageous individuals who each face NF in their own way.

Read the stories of those living with NF…

 
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